Chemo Brain and Writing the Stories that are Mine to Tell

I had my first infusion of chemo drugs about two weeks ago and all went well. Next round in another week.

kathy first day of school pic copy

Not happy about chemo brain

One of the side effects of cancer treatment can be a little something that is often referred to as “chemo brain.” I think I have a bit of that going on with my brain. Right after that first round of chemo I found that the computer and I were not at all compatible. More than about 5 minutes of looking at the computer screen and I was done. And typing up something? The movement of my head up and down from keyboard to screen – not good. Fortunately, that has improved, but the computer and I just aren’t as comfortable with one another as we once were.

I think I have always been sensitive to drugs in my system and it’s one of the reasons I have always taken as little medication as possible. When I first started taking thyroid replacement, I was given what was considered the “standard” dose and was soon suffering daily panic attacks. Cutting the meds back by half solved the problem. After surgery a couple of years ago, I thought the anesthesia drugs would never work their way out of my system. I couldn’t drive for nearly six weeks because of the vertigo I felt when turning my head from side to side – something one must do with some frequency when driving. So it’s no surprise, really, that I would feel some effects from the strong drugs currently coursing through my body.

Some people experience effects similar to Alzheimer’s or other dementia – problems with short term memory, an inability to come up with a word, etc. I haven’t experienced any of that yet. Instead, I feel like my brain works in very slow motion. Sometimes so slowly that there isn’t a thought there at all, it seems! It is the “executive” function of my brain that is the problem – the ability to plan, to make decisions, to think through a problem, to follow through.

This poses a problem for someone who would like to keep her blog going. Doing any real “genealogy” seems a bit out of the question at the moment as my little brain just doesn’t seem to have the capacity to think things through and make sense of them. I had a couple of additional posts in mind related to the Bryan Family Bible and I have one partially written. But I can’t for the life of me finish it! I don’t know what to say – are there some conclusions to draw from this? More story to tell? I don’t know! And so it will sit unfinished for the time being.

One of the things I need to do in response to my “chemo brain” is to use my brain and challenge it. I think writing and keeping this little blog going is one way for me to do that. But what to write when my brain is so foggy?

My first thought was just to do a weekly family recipe. But I like to prepare the recipe and take a picture of it to go with the post. I’m not really into cooking right now. And the perfectionist in me just doesn’t think a recipe with no picture is good enough.

My second thought was to pull out the “family treasures” – items that have come into my possession from my grandparents and others. I could take pictures of them and write whatever I know about them or any attached memories. And it would be a good record for my kids to know who these things belonged to and the stories (if any) behind them. I could do that, I think.

My third thought is to just tell some of my own stories. I may not be able to pull together the story of an ancestor, but I think I could tell some of my own. Yesterday on Facebook, one of my friends made a comment about bats (the animal kind) and I replied that someday I would have to tell her my bat story. I could do that.

I’m wondering about joining in with the “Book of Me” prompts that Julie Goucher is providing at Anglers Rest. I’m behind – they started August 31st, but maybe the prompts would be a good way for me to work my way back into writing – and just do it at my own pace.

Or maybe I’ll just tell some random stories – like my bat story.

We’ll see. At least I wrote something today!

P.S. – A fellow blogger was unable to post a comment here the other day. I’d like to know if anyone else has had that problem. The same day, my stats showed that 7 email followers had left my blog. Did they just all decide to drop me after my cancer announcement, or is that some kind of fluke too? If you have experienced a problem, please email me at:
abbieandeveline at gmail dot com.

 

 

Why I Haven’t Been Blogging – But Hoping I Can – Even if Just a Little!

scan0044After blogging for over a year now, I found that there is a wonderful community of family history bloggers. Many of you began to feel like friends through the comments we leave for one another and the help we give one another.

It’s hard to know what and how much to share with people I’ve never actually met, but I feel like I owe you an explanation for my absence – especially those who read my blog regularly.

I started not feeling well back in April. High liver enzymes along with other weird symptoms led us down a path to try to find what was causing those high liver numbers and so we tested for about every virus and autoimmune disease there is. Always negative. And then my liver enzymes returned to normal and we thought I’d feel better.

But, more rashes and swelling and ….

Finally, I had a week when I felt that there were tender lymph nodes in my neck. Now we were headed in the direction of a diagnosis. Turns out I have a Non-Hodgkins lymphoma of the T cells – a kind that has a really long name. At first we thought it was the “easy” lymphoma, but this one is a little trickier. In addition to chemo, I’ll be having a stem cell transplant (my own stem cells) sometime in the process.

I had my first infusion of chemo a few days ago and I’m feeling pretty good. I have no idea what lies ahead. I’m just taking one day at a time.

I’m hoping I can find something easy to post to keep things going here – maybe a family recipe a week, or a family “treasure” – but I’ll have to see how it goes. I may sleeping for the next 6 months, for all I know!

Anyway – that is why I haven’t been here. And I haven’t been reading what you write either. And I miss it! And I miss you!

Kathy